Resources

General Support

• Rare Parenting Magazine

• Once Upon A Gene Podcast

• Global Genes

• National Organization for Rare Disorders (NORD)

• Simons Searchlight

Autism Support

• Autism Speaks

• Autism Society

Caregiver and Sibling Resources

• RARE Disease Siblings Resource Guide (Global Genes)

• Raregivers Global

• Rare Mamas

• ​​A Mother’s Rest

Assistive Devices/Medical Equipment

• National Mobility Equipment Dealers Association

• Variety, The Children’s Charity

Travel Resources

• Angel Flight Network

• Miracle Flights: Commercial flights anywhere in the US (household income requirements)

• Mercy Medical Angels: Ground and air transportation

• PALS Sky Hope: Free flights for medical patients requiring medical diagnosis, treatment or follow-up who cannot afford or are unable to fly commercially

Fundraising Resources

• Help Hope Live: Medical fundraising for the expenses insurance doesn’t cover