Born on December 5, 2023, this sweet little one was identified with Primrose Syndrome at just 1 year and 4 months old. Since then, their family and care team have been working closely to support his health and development every step of the way.

Every six months, they complete comprehensive follow-ups with multiple specialists. Neurology monitors with EEG to rule out epilepsy, hearing is carefully evaluated (with hearing aids ready if needed), endocrinology screens for metabolic concerns, orthopedics checks bone density, and ophthalmology follows closely with planned full eye exams.

Through it all, this brave child continues to grow, learn, and inspire everyone around them.