Greetings from Istanbul, Turkey! Full of bright energy and determination, Lilya was diagnosed with global developmental delay at 18 months, and since then she has been receiving intensive therapy. When she was 2.5 years old, genetic testing showed Lilya has Primrose Syndrome.

Lilya is generally a very happy child, with a strong personality that shines through, especially in moments when she’s trying to get something she wants (or avoid something she doesn’t!). Although she doesn’t speak yet, she communicates beautifully through her behavior and expressions. With patience and hope, her family and therapists continue to wait for the day her words arrive.

Lilya loves hugs and kisses. She enjoys jumping, swinging, listening to music (even if she changes the song constantly!), eating, and sleeping, although unfortunately for her family, not at night.

Whenever she feels stuck, she often finds a clever way to escape and keeps pursuing what she wants.

This journey hasn’t been easy, but her loved ones are deeply proud of Lilya’s effort to overcome obstacles. They cherish her immensely and celebrate her strength every day.

We share her story to raise awareness and celebrate the strength of her and her incredible family.