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Get Involved

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Thank you for your interest in fundraising for Beyond Primrose ZBTB20 Foundation!

With your help, we believe it is possible to build a future with meaningful treatments for Primrose Syndrome. One of the most important steps we can take is funding the critical research needed to deepen understanding, improve care, and lead to life-changing breakthroughs.

By hosting a fundraiser, you can help advance research while raising awareness of Primrose Syndrome. Every time someone shares our mission with family, friends, coworkers, or members of their community, our network of supporters grows stronger.

No fundraiser is too large or too small. Whatever you choose to do, we are deeply grateful for your time and effort—and we are here to provide guidance, resources, and support along the way.

Fundraiser Ideas

  • Bring friends, family, and community members together for a walk or run in support of Primrose Syndrome.

  • Begin by choosing a date, location, and route. Then decide how you will collect donations, such as through a registration fee, online fundraising page, or donation table at the event.

  • Color stations, bubbles, music, and children’s activities can make the event especially family-friendly. Promote the event through social media, community calendars, schools, local businesses, and flyers around town.

  • Helpful tip: Ask local businesses to donate water, snacks, prizes, or supplies for participants.

Walk or Run

Lemonade Stand, Bake Sale, or Craft Sale

  • A classic fundraiser can make a meaningful difference.

  • Choose a safe location with plenty of foot traffic and make your table easy to see with signs explaining Primrose Syndrome and the Beyond Primrose mission. Provide a secure cash-donation box and a clearly displayed QR code for online donations.

  • This idea can also be adapted for a craft sale, yard sale, school event, holiday market, or community festival.

  • Host a game night in person or online, organize a trivia competition, or plan a watch party for a sporting event or popular television show.

  • Ask participants to reserve their place by making a donation. You can also raise additional funds through raffles, prizes, brackets, or friendly mini-competitions.

  • Ideas include board and card games, bingo, trivia, professional or college sports watch parties, television-show brackets, and family game tournaments.

Game or Trivia Night

  • An auction is a fun way to involve local businesses, artists, and community members.

  • Begin by gathering items that people will be excited to bid on. These may include handmade goods, gift baskets, local merchandise, professional services, event tickets, restaurant gift cards, or special experiences.

  • Promote the auction through social media, email, flyers, and community partners. You may host the auction in person, online, or as a combination of both.

Auction

  • You do not have to be an experienced golfer to organize a charity golf tournament.

  • Contact a local golf course and work with its event team to select a date, determine costs, and plan the schedule. Recruit volunteers and sponsors, then consider adding contests, raffles, auctions, or merchandise sales to increase participation and fundraising.

  • Promote the tournament through social media, local businesses, golf organizations, and community news outlets.

  • For a more flexible option, consider a virtual golf challenge that allows participants to play at the course and time of their choice.

Charity Golf Tournament

Restaurant or Business Fundraiser

  • Ask a local restaurant to host a Beyond Primrose fundraising night and donate a percentage of participating sales. GroupRaise may help you identify restaurants that offer fundraising partnerships.

  • You can also contact grocery stores, coffee shops, gyms, boutiques, and other local businesses about hosting a give-back day, donation drive, checkout campaign, or other partnership benefiting Beyond Primrose.

Birthday or Special Event Fundraiser

  • Invite friends and family to donate to Beyond Primrose in place of birthday, anniversary, holiday, or special-event gifts.

  • This simple fundraiser is also an opportunity to share information about Primrose Syndrome and explain why research and community support are so important to your family.

Thank Your Supporters

Please remember to thank the people who support your fundraiser. Expressing gratitude is an important part of responsible fundraising and helps donors understand how much their generosity means.

Beyond Primrose may send an acknowledgment when a donation is made directly to the foundation, but we also encourage fundraiser hosts to thank their supporters personally. Consider sharing why the cause matters to you and how each donation helps advance research, strengthen family support, and create hope for people affected by Primrose Syndrome.


Contact Us

Interested in hosting a fundraiser or community activity for Beyond Primrose ZBTB20 Foundation? Get in touch with your ideas and questions. We would love to hear what you have in mind and stay connected throughout the planning process. Our team can help provide approved information about Primrose Syndrome, share foundation materials, and promote and celebrate your initiative with the Beyond Primrose community.

Please contact us before using the Beyond Primrose name or logo, requesting sponsorships on the foundation’s behalf, or making commitments to businesses or event partners. Coordinating with our team helps ensure that fundraising activities accurately represent the foundation and that donations are collected and directed appropriately.

After your event, we invite you to share your photos and videos with us so we can celebrate your efforts and their impact.

Thank you for helping raise awareness, strengthen our community, and move Primrose Syndrome research forward.